Wednesday, October 22, 2014

Birthdays, blessings and breathing through the rest.

It's been a crazy week as usual. My littlest boy's birthday was a very happy one. There was no huge party this year. Just a small family lunch on Sunday and yesterday (his actual birthday) he had a friend come after school. I had to go to basketball training with the eldest so hubby took the birthday boy and his mate bowling. Then we all went to the pub for dinner and home for ice cream cake and trying out the new scooter. At bed time he repeatedly thanked hubby and I for "the best birthday". As a parent that just makes my heart sing. He really is a beautiful kid.  Sure, I had to bite my tongue a few times when I'd normally scold him for not doing what I was asking him (like getting ready for school), or being over-the-top noisy and silly in the car, but hey, if you can't cut the kid a little slack on his birthday, then when can you? ;-) Seriously though, the birthdays of my kids are great days to reflect on what wonderful little beings they are, and what a gift they've been in our lives......even if they are EXHAUSTING at times!

In other news around here, we need a holiday. Especially my darling hubby. He works his bum off in a stressful job and he's pretty worn out right now. Thankfully he's got a week off in November. While it would be nice to go away somewhere, I really think what he needs is a week to just chill out at home and lay on the couch every day if he wants to.

I'm enjoying the warmer weather that we've been having this week. I've been trying to get the dog out for a walk each day, depending on my energy levels. I always feel better when I do - usually there are consequences though. I pay for a twenty minute walk for the rest of the day, and sometimes half of the next day, but I still long to get out there in the sunshine for a short while. It's great to just breathe fresh air and I enjoy looking at all the flowers in the gardens of our neighbourhood. How I miss those days when I took for granted that I could lace up my shoes and go for a run, enjoying the feeling of a strong body and the elation of exhaustion that comes from exercising hard. That feeling of knowing that recovery was certain and I'd be up for more the next day. I still miss it. And even though it's been 8 long years and I've largely come to terms with chronic illness, there are still days when the mourning for my old life swells up and washes over me.

But this is where I'm at and I choose, as always to focus on my blessings. I only have to look around me to know that I am an incredibly lucky girl. I still seek healing and answers about my health every day. 

Tomorrow I'm off to see my rheumatologist again to discuss the latest round of tests (heart, lung, and blood) I've had - to find out if my worsening health is fibromyalgia related or something more. We've been trying to track down what's going on since early this year, but as always, there's lots of signs and clues but nothing conclusive. While I don't like the sound of some of the potential diagnoses that have been suggested, if it is one of those nastier autoimmune conditions (scleroderma or lupus) then I need to know. The consequences of letting something like that go undiagnosed and untreated can be pretty frightening. 

As those with chronic health problems will know, nothing happens quickly in this process. Getting appointments with the various specialists can take months, so extreme patience is required, as well as a steady nerve not to let your mind run away with worst case scenarios. 

So we shall see what tomorrow brings, but for now, I'd better get on with what's right in front of me, and that's two loads of washing that need hanging out. School pick-up time will be here before I know it........and I've just realised I've got nothing to feed them after school so I'd better get off the ipad and get moving! See you soon. 


  1. Sending some birthday wishes to your lad! I hope you're able to get some answers soon on the health front. This term is always such a crazy one I find. Even if I try to keep a firm hand on the calendar "gates", there's always just so much on this time of year. Really loving this little 4 day break at our place - one of the few with nothing on the calendar. Aaah bliss. Loved your butterfly pastel project. Creating is so relaxing and therapeutic isn't it. The pastels look lovely to work with.

    1. Hi Sue,
      Thanks for stopping in to say hello. It certainly is winding up to the craziest time of year! Thanks for your kind words about my butterfly pic - I think that pastels will be a long time love of mine. Have enjoyed seeing the pics of your kiddos on FB. They are getting so big!! Love to you. xo


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